Empowering caregivers of children with disabilities through self-help groups

Since 2015 we have developed and supported self-help groups for caregivers of children with disabilities in a rural part of Kenya. Currently we have 12 self-help groups with a membership of around 135. Through their participation in the self-help groups, the caregivers are empowered to take control of their lives by speaking up, supporting each other and acting to bring about positive changes.


An extension of university-based research and development, we registered our work on self-help groups with the UK Charity Commission in August 2023. Our in-country partner is Walezi Foundation- a non-government funded organisation. The aim is to further develop the potential of selfhelp groups in Kilifi County, one of the poorest areas in Kenya, and to grow the number of groups supported.


Long-term caregiving has been associated with fatigue, distress and poverty. Many feel helpless in the face of such challenges and very much alone. A combination of superstition, stigma and discrimination marginalises these families. Not only can these children be excluded from education, employment and contact with other villagers, the level of stigma is such that the caregiver’s shame may lead them to deny their child’s existence. This creates social isolation for both the caregiver and the child.


In the beginning we listened to what people told us about their lived experiences: “People at home have very little to do with the child. The child is lonely most of the time and there is little assistance from family members and the community.”


What do the self-help groups do?

The self-help group members meet regularly. They share their experiences as caregivers and provide support for each other. Our partner NGO – Walezi Foundation – visits all the groups at regular intervals. The caregivers are supported to talk about: their personal situation and consider ways to support each other in the group; the inclusion of persons with disabilities in home and community events; encouraging more positive attitudes towards disability in the community; the importance of accessing education and health services; and practical solutions to relieve the challenges faced by them all in everyday life. Working together they register formally as a self-help group with the Kenyan government department of Social Development and embark on livelihood activities to alleviate their financial challenges. Since 2023 we have provided start-up funds for capital projects to expand the financial capacity of each group. Some of the projects that have been started include: livestock rearing, hiring large tents and chairs for community events and building a water tower for storing and selling water.


Through this work we have shown that membership of a self-help group can bring about dramatic changes to the caregivers’ lives and those of their children with disabilities, including:

  • development of essential skills for livelihood activities;
  • growth in family income;
  • increased social support;
  • better access to health for all;
  • more children with disabilities in education.


Over the next three years we aim to expand our coverage of community-based self-help groups in Kilifi County, Kenya and roll out our mentorship scheme across other African countries.


If you want to find out more about our work, please go to our website: www.walezi-caregivers-kenya.org

Karen Bunning • February 28, 2025
September 7, 2026
Most of us want to leave the world a little better than we found it. Whether that's through the people we love, the values we pass on, or the causes we care about, we all hope our legacy will make a difference. One of the simplest ways to do that is by writing a will. This autumn, we are proud to be taking part in the Change Starts with a Will campaign, allowing our supporters to write or update their will free of charge through our trusted partner, Octopus Legacy. Why writing a will matters Writing a will isn't just about deciding who inherits your possessions. It's about making sure your wishes are respected and providing peace of mind for the people you care about. Having a will means you can: Protect the people you love. Make important decisions about your estate. Reduce uncertainty for your family. Leave a lasting gift to a cause that reflects your values. Many people put off writing a will, believing it's something to think about later in life. In reality, it's one of the most important documents you'll ever create. A legacy that supports education Steve Sinnott dedicated his life to championing education as a fundamental human right. His belief was simple but powerful: every child deserves the opportunity to learn, and every teacher deserves the support they need to inspire future generations. Today, we continue that mission by working with partners across the world to improve access to quality education, strengthen teaching and support communities where education can change lives. When you choose to leave a gift in your will to The Steve Sinnott Foundation, you're helping ensure that this work can continue for years to come. After taking care of family and friends, even a small gift could help provide learning opportunities, strengthen education systems and create brighter futures for generations to come. A gift that lasts beyond a lifetime Legacy gifts play an important role in helping charities plan for the future. Your support could help us continue investing in sustainable education projects, supporting teachers and ensuring more children have access to the education they deserve. It's a powerful way to ensure your values live on long into the future. Write your will for free As part of our Autumn 2026 campaign, we're offering supporters the opportunity to write or update their will free of charge through Octopus Legacy. There is no obligation to leave a gift to The Steve Sinnott Foundation, but we hope you'll consider remembering us after you've taken care of those closest to you. Together, we can continue Steve Sinnott's vision of a world where education changes lives. Find out more If you've been thinking about writing your will, there's never been a better time. Our free will service is available until 31 October 2026 , making it easy to protect the people you love while considering the lasting impact your legacy could have on education worldwide.  https://octopuslegacy.com/online-will?channel=partner Change starts with a will. And together, we can help create a future where education is accessible to everyone.
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